I have received the paperwork on the child and family I will be working with through the Make-A-Wish foundation.
The medical condition has been listed as Hypoplastic Left Heart Syndrome. This is new to me so I am currently doing some research to better understand the condition prior to meeting with the child.
If anyone knows of any good websites to assist in this research / data gathering please to not hesitate to let me know.
It will probably be another 2 weeks or so before I actually can meet with the family.
This should be fun and exciting. I will keep y'all updated!
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Thank you for the update. I'll see if any of my nurse friends can recommend some good research websites! You're doing a wonderful thing for this child and family :)
ReplyDeleteHi Mommy T:
ReplyDeleteI'm a health editor; so I did a quick search for you.
Here's a nice, easy to read overview: http://www.nlm.nih.gov/MEDLINEPLUS/ency/article/001106.htm
I always like the Mayo Clinic: http://www.mayoclinic.com/health/hypoplastic-left-heart-syndrome/DS00744
Here's a quick overview from the American Heart Association: http://www.americanheart.org/presenter.jhtml?identifier=1353
This is more technical and in-depth from emedicine: http://emedicine.medscape.com/article/890196-overview
Hope this helps.
45 an Aspiring - thank you so much for your recommendations. These websites are wonderful and most helpful. I appreciate your help with this one.
ReplyDeleteSo I was thinking just the other day, "Wouldn't it be funny if Mommy T and Favorite Cousin were teamed up for this Make-a-Wish?" Um... DUH! Did you tell me this was you? Because I just feel silly now! (FYI - 45aA tipped me off and then I looked more closely at your photo...)
ReplyDeleteIt is me :)
ReplyDeleteI couldn't believe MN & The Grandpa were so clueless. . . :) Had to take one without the "S" blood to make the connections. . .
ReplyDeleteSome of your poems have your grandmother's voice. It's nice. <3