Thursday, April 2, 2009

Wish Come True - Research

I have received the paperwork on the child and family I will be working with through the Make-A-Wish foundation.

The medical condition has been listed as Hypoplastic Left Heart Syndrome. This is new to me so I am currently doing some research to better understand the condition prior to meeting with the child.

If anyone knows of any good websites to assist in this research / data gathering please to not hesitate to let me know.

It will probably be another 2 weeks or so before I actually can meet with the family.

This should be fun and exciting. I will keep y'all updated!


  1. Thank you for the update. I'll see if any of my nurse friends can recommend some good research websites! You're doing a wonderful thing for this child and family :)

  2. Hi Mommy T:

    I'm a health editor; so I did a quick search for you.

    Here's a nice, easy to read overview:

    I always like the Mayo Clinic:

    Here's a quick overview from the American Heart Association:

    This is more technical and in-depth from emedicine:

    Hope this helps.

  3. 45 an Aspiring - thank you so much for your recommendations. These websites are wonderful and most helpful. I appreciate your help with this one.

  4. So I was thinking just the other day, "Wouldn't it be funny if Mommy T and Favorite Cousin were teamed up for this Make-a-Wish?" Um... DUH! Did you tell me this was you? Because I just feel silly now! (FYI - 45aA tipped me off and then I looked more closely at your photo...)

  5. I couldn't believe MN & The Grandpa were so clueless. . . :) Had to take one without the "S" blood to make the connections. . .

    Some of your poems have your grandmother's voice. It's nice. <3